So I got a call from a certain Doctor today, he began by telling me that almost all of Mason’s Drs. had a “Complex Team meeting”. I was thinking OK, now what. I can tell you I was not even kind of ready for what he said.
“As a team we cannot agree on Mason’s diagnosis or on “who” Mason is. We all see him differently we do know that there are issues and that he is suffering. We do know that something has to be done and we feel that the best way to do so is to admit Mason to Child and Youth Mental Health Psychiatric Unit.”
::HEAD EXPLOSION::
::BOOOM::
“You want to what?”
“Well we need to figure out Mason and who he is, what is causing his behaviours and what to do about them. Mason doesn’t sleep and we need to figure out a way for him to sleep, that needs to be done in a controlled enviroment. We need to talk about what meds he is on and what he needs and doesn’t need. Mason will have assessments to figure out what is wrong with him. And this is the only option to stop him from suffering.”
Now here is the History of Mason.
Mason is g-tube fed and has lots of issues with swallowing and digestion.
Mason was diagnosed with PDD-NOS a form of Autism in November 2010. This particular Dr. who called me on behalf of all the other Drs. thinks that Mason doesn’t have Autism because the assessment was done privately and we got a “pity” diagnosis. What is stupid is the assessments were done privately, but two of the three Drs. are on the team at Sunny Hill. Sunny Hill is the team he wants him to be looked at by.
The same Dr. doesn’t believe that Mason has Smith Magenis Syndrome, because we don’t have the blood tests results that back up the clinical diagnosis. Except the Genesist is certain Mason has it, do to him checking of every box. Thats why its called a “Clinical Diagnosis”. In truth Mason may not have SMS, but if you look at the characteristics of SMS, you see Mason. So thats why they gave him the diagnosis. Everything matches up.
This Dr. believes that if we could get Mason to sleep properly than Mason would do a complete 360 turn and have no behaviours. I get that behaviours can be made worse by loss of sleep, but that is not the case with Mason.
I was at the OT just after I got the call from “this” Dr. and I asked the OT his thoughts on the behaviour vs sleep issue. His answer was of course it can help, but with Mason sleep would never be enough. “There is more going on than sleep”.
Of course there are way more issues that were not addressed in this post, but I don’t care.
They feel that Mason should be admitted but wouldn’t give me any answers to all the many questions we have.
So there you have it.
My three year old Son’s Drs. believe he should be admitted to the Psychiatric ward.
Talked to someone who worked there… they don’t get three year olds.
Now what?
Well now I have a headache.
































